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Management of Spinal Lipoma in Children

This page was last updated on October 6th, 2024

Initial Management at Presentation

Following the initial assessment, and after balancing the risk and benefits of treatment, there are two management options:

  • Observation: Conservative management has been decided and the child has been assigned to follow-up.
  • Surgery: The child will undergo lipoma resection and detethering.

Adjunctive Therapies

  • None: None are typically required.

Follow-up

The following is a suggested follow-up paradigm for children with lumbosacral lipoma.

Observational management

For children on nonoperative pathway:

  • Precontinent children: Precontinent children should be assessed at 6-month intervals until continence is established or there is a new decision to operate. Follow-up consists of both a clinical assessment of neurodevelopmental progress and motor function (including muscle charting), and a urological assessment, including evaluation of efficacy of bladder emptying.
  • Continent children: Once continence is achieved (and for children that have established continence), follow-up can be reduced to an annual basis.
  • Clinical and MRI evaluation: Clinical evaluation is the most important means of follow-up. Routine follow-up MRI evaluations are not indicated unless there are specific concerns (e.g., enlarging syrinx).

Postsurgical management

Children who have undergone surgery should receive follow-up on the following schedule:

  • 2 weeks after surgery: A wound check is necessary to assess wound healing, evidence of infection, CSF leak, or pseudomeningocele formation. Also, a postmicturition ultrasound scan should be performed to evaluate bladder emptying.
  • 3 months after surgery: A clinical re-evaluation with muscle examination and urological reassessment is required. Include an MRI of the lumbosacral spine to assess the extent of lipoma resection, measure cord-sac ratio (as this has prognostic significance), and provide a baseline for future comparison.