Tap on and choose 'Add to Home Screen' to create a shortcut app

Tap on and choose 'Add to Home Screen/Install App' to create a shortcut app

Outcome for Myelomeningoceles in Children

This page was last updated on May 9th, 2017

  • Historically, high mortality rate: In 2001, a mortality rate of 24% was reported in a large series of patients with 20-25 year follow-up, with the majority dying in infancy and preschool years. A rising death rate continued in adulthood after a temporary slowing down in school-aged children and teens. Interestingly, while childhood deaths were primarily related to hindbrain herniation, deaths in adulthood were related to renal failure (43).
  • Ambulation expected: 89% of preteen children with myelomeningocele are “community ambulators” when patients with severe developmental delay (~13% of patients) are excluded; about 50% of patients after adolescence are “community ambulators” (1, 42).
  • Independence expected: About 82% of adults are independent in ADLs; 32% are gainfully employed (1, 60).
  • Hydrocephalus a major health concern: 80% of children require treatment for hydrocephalus (1). This appears to be lower after in utero myelomeningocele repair. 85% of shunts placed at birth will malfunction within 10 years; 40% of shunts placed at birth malfunction within the first year (45). Postoperative shunt infection rates in children with myelomeningocele are approximately 11–18% (1, 43, 46).

Your donations keep us going

The ISPN Guide is free to use, but we rely on donations to fund our ongoing work and to maintain more than a thousand pages of information created to disseminate the most up-to-date knowledge in the field of paediatric neurosurgery.

By making a donation to The ISPN Guide you are also indirectly helping the many thousands of children around the world whose treatment depends on well-informed surgeons.

Please consider making a donation today.

Use the app

The ISPN Guide can be used as a standalone app, both on mobile devices and desktop computers. It’s quick and easy to use.

Fully featured

Free registration grants you full access to The Guide and host of featured designed to help further your own education.

Stay updated

The ISPN Guide continues to expand both in breadth and depth. Join our mailing list to stay up-to-date with our progress.