Initial Management at Presentation
Following the initial assessment, and after balancing the risk and benefits of treatment, there are two management options:
- Observation: Conservative management has been decided and the child has been assigned to follow-up.
- Surgery: The child will undergo lipoma resection and detethering.
Adjunctive Therapies
- None: None are typically required.
Follow-up
The following is a suggested follow-up paradigm for children with lumbosacral lipoma.
Observational management
For children on nonoperative pathway:
- Precontinent children: Precontinent children should be assessed at 6-month intervals until continence is established or there is a new decision to operate. Follow-up consists of both a clinical assessment of neurodevelopmental progress and motor function (including muscle charting), and a urological assessment, including evaluation of efficacy of bladder emptying.
- Continent children: Once continence is achieved (and for children that have established continence), follow-up can be reduced to an annual basis.
- Clinical and MRI evaluation: Clinical evaluation is the most important means of follow-up. Routine follow-up MRI evaluations are not indicated unless there are specific concerns (e.g., enlarging syrinx).
Postsurgical management
Children who have undergone surgery should receive follow-up on the following schedule:
- 2 weeks after surgery: A wound check is necessary to assess wound healing, evidence of infection, CSF leak, or pseudomeningocele formation. Also, a postmicturition ultrasound scan should be performed to evaluate bladder emptying.
- 3 months after surgery: A clinical re-evaluation with muscle examination and urological reassessment is required. Include an MRI of the lumbosacral spine to assess the extent of lipoma resection, measure cord-sac ratio (as this has prognostic significance), and provide a baseline for future comparison.
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